Information between 9th April 2024 - 19th April 2024
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Parliamentary Debates |
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Large-scale Solar Farms
99 speeches (25,869 words) Thursday 18th April 2024 - Westminster Hall Department for Energy Security & Net Zero Mentions: 1: Caroline Johnson (Con - Sleaford and North Hykeham) is sunny and there is bright daylight.In addition, battery storage is carbon-intensive and requires rare - Link to Speech |
NHS: Long-term Sustainability
66 speeches (28,716 words) Thursday 18th April 2024 - Lords Chamber Department of Health and Social Care Mentions: 1: Baroness Blackwood of North Oxford (Con - Life peer) In rare diseases this is over 30% and rising, while in some individual conditions, such as cystic renal - Link to Speech |
Covid-19: Response and Excess Deaths
91 speeches (19,832 words) Thursday 18th April 2024 - Commons Chamber Department for Business and Trade Mentions: 1: Peter Bottomley (Con - Worthing West) know about this afterwards—not during the debate—BMJ article reference 2024;384:q488 looks at some rare - Link to Speech |
Dentistry: Access for Cancer Patients
25 speeches (8,747 words) Wednesday 17th April 2024 - Westminster Hall Department of Health and Social Care Mentions: 1: Preet Kaur Gill (LAB - Birmingham, Edgbaston) In rare cases, extractions afterwards can result in bone necrosis, whereby the jawbone essentially dies.It - Link to Speech |
Building Safety Update
1 speech (392 words) Wednesday 17th April 2024 - Written Statements Department for Levelling Up, Housing & Communities Mentions: 1: Michael Gove (Con - Surrey Heath) It is the latest in a series of measures which minimise both the risk and impact of rare, but high-consequence - Link to Speech |
Oral Answers to Questions
139 speeches (9,805 words) Wednesday 17th April 2024 - Commons Chamber Cabinet Office Mentions: 1: Keir Starmer (Lab - Holborn and St Pancras) It is a rare unsigned copy; it is the only unsigned copy. It is quite the read. - Link to Speech |
Finance (No. 2) Bill
69 speeches (18,023 words) 2nd reading Wednesday 17th April 2024 - Commons Chamber HM Treasury Mentions: 1: James Murray (LAB - Ealing North) seen a great deal of chopping and changing in capital allowances in recent years—indeed, this is a rare - Link to Speech |
Data Protection and Digital Information Bill
117 speeches (25,336 words) Committee stage Wednesday 17th April 2024 - Grand Committee Department for Science, Innovation & Technology Mentions: 1: Baroness Kidron (XB - Life peer) Even when the rights are being infringed, it is rare that an individual data subject has the time, knowledge - Link to Speech |
Tobacco and Vapes Bill
213 speeches (48,358 words) 2nd reading Tuesday 16th April 2024 - Commons Chamber Department of Health and Social Care Mentions: 1: Daisy Cooper (LD - St Albans) What we need is research in rare cancers, outdated cancer scanners updated, cancer nurses and efforts - Link to Speech |
Horticultural Peat: Prohibition of Sale
4 speeches (2,343 words) 1st reading Tuesday 16th April 2024 - Commons Chamber Mentions: 1: Theresa Villiers (Con - Chipping Barnet) be needed, some of which may need to be permanent, such as in relation to science and research and rare - Link to Speech |
Human Rights: Consular Services
27 speeches (10,903 words) Tuesday 16th April 2024 - Westminster Hall Foreign, Commonwealth & Development Office Mentions: 1: David Rutley (Con - Macclesfield) In the very rare instances in which that is the case, a senior official such as that country’s director - Link to Speech |
Select Committee Documents |
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Thursday 18th April 2024
Written Evidence - Ipswich Disabled Advice Bureau DPH0047 - Disabled people in the housing sector Disabled people in the housing sector - Levelling Up, Housing and Communities Committee Found: during emergencies unless appropriately insulated and fully insulated lifts are very expensive and rare |
Thursday 18th April 2024
Special Report - Second Special - Parliamentary Scrutiny of International Agreements in the 21st century: Government Response to the Committee’s Second Report of session 2023-24 Public Administration and Constitutional Affairs Committee Found: We recognise that, while rare, there may be circumstances where a treaty needs to enter into force as |
Thursday 18th April 2024
Written Evidence - The Restart Project EWCE0001 - Electronic waste and the circular economy: follow-up Environmental Audit Committee Found: Whilst the overall volume of valuable and rare materials in our e-waste is significant, they are |
Thursday 18th April 2024
Written Evidence - Chartered Institution of Wastes Management EWCE0011 - Electronic waste and the circular economy: follow-up Environmental Audit Committee Found: The development of more advanced methods of extracting and recycling the valuable rare earth elements |
Wednesday 17th April 2024
Correspondence - Letter from Aviva to the Chair relating to insurance premiums, dated 10 April 2024 Treasury Committee Found: offer additional information for us to consider – for example, the vehicle could be niche (such as a rare |
Wednesday 17th April 2024
Oral Evidence - Cabinet Office, Cabinet Office, HM Revenue and Customs, and Department for Work and Pensions Public Accounts Committee Found: Esther Wallington: We have had one case of fraud, but they are quite rare. |
Wednesday 17th April 2024
Scrutiny evidence - Petitioner Submission Royal Albert Hall Bill [HL] Committee Found: As with a typical shareholders annual general meeting it is rare that more than a few shareholders |
Wednesday 17th April 2024
Scrutiny evidence - Promoter Evidence Part 3 of 4 Royal Albert Hall Bill [HL] Committee Found: by the Corporation which would otherwise be uneconomical to mount, (which is likely to be extremely rare |
Wednesday 17th April 2024
Written Evidence - The Investment Fraud APPG FRA0038 - Fraud Fraud - Home Affairs Committee Found: Victims reported being denied justice and that in the rare cases of a successful conviction, |
Wednesday 17th April 2024
Written Evidence - Transparency Task Force FRA0027 - Fraud Fraud - Home Affairs Committee Found: Such rare situations could be easily overcome through a system of secure telephone authorisation |
Wednesday 17th April 2024
Correspondence - Letter from the Minister for Data and Digital Infrastructure regarding the Post-Incident Review into the disruption of the 999 Public Emergency Call Service on Sunday 25 June 2023, dated 21 March 2024 Home Affairs Committee Found: service has proven itself to be extremely resilient, and the incident that occurred on 25 June was rare |
Wednesday 17th April 2024
Written Evidence - National Fire Chiefs Council (NFCC) FRS0010 - Fire and Rescue Service Fire and Rescue Service - Home Affairs Committee Found: Lancashire Fire and Rescue Service: NDAs are used on very rare occasions and any use is in line with |
Wednesday 17th April 2024
Written Evidence - Fire and Rescue Services Association FRS0008 - Fire and Rescue Service Fire and Rescue Service - Home Affairs Committee Found: On the rare occasions where this does happen, relations can break down. |
Tuesday 16th April 2024
Oral Evidence - 2024-04-16 16:15:00+01:00 Proposals for backbench debates - Backbench Business Committee Found: As you will understand, on Thursdays the time gets squeezed anyway, so it is very rare—almost impossible—that |
Tuesday 16th April 2024
Oral Evidence - Joshua Rozenberg KC (Hon), King's College London, University of Bristol, and University of Glasgow Justice Committee Found: It is why it is incredibly rare. |
Tuesday 16th April 2024
Written Evidence - Ms Emma Reilly MUL0006 - International relations within the multilateral system International relations within the multilateral system - Foreign Affairs Committee Found: It would therefore be exceptionally rare for an 2016-2024. |
Tuesday 16th April 2024
Written Evidence - Hong Kong Watch MUL0015 - International relations within the multilateral system International relations within the multilateral system - Foreign Affairs Committee Found: 7305ab53f4c3 23 https://www.theguardian.com/world/2024/jan/23/china-human-rights-record-criticised-un-faces-rare |
Tuesday 16th April 2024
Written Evidence - Association of Independent Promoters GMV0008 - Grassroots music venues Grassroots music venues - Culture, Media and Sport Committee Found: disaster.In towns where there is only one venue serving that community, if it closes, it’s very rare |
Tuesday 16th April 2024
Oral Evidence - 2024-04-16 10:00:00+01:00 NHS leadership, performance and patient safety - Health and Social Care Committee Found: We can pour in ever more recommendations, targets and incentives, but it feels to me very rare that |
Tuesday 16th April 2024
Oral Evidence - High Value Manufacturing Catapult, Airbus UK, and ABPI (The Association of the British Pharmaceutical Industry) Industrial policy - Business and Trade Committee Found: We had lots of different industry sectors sitting around the table looking at what rare earths they |
Monday 15th April 2024
Written Evidence - Stop Wethersfield Airfield Prisons UKR0009 - Asylum Accommodation and UK-Rwanda partnership Public Accounts Committee Found: There is substantial evidence of the presence of barbastelle bats which are rare. 7.Contamination |
Written Answers | ||||||||||||||||
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Rare Diseases: Drugs
Asked by: Peter Dowd (Labour - Bootle) Monday 15th April 2024 Question to the Department of Health and Social Care: To ask the Secretary of State for Health and Social Care, when the National Institute for Health and Care Excellence next plans to review the entry criteria for its highly specialised technologies programme for the evaluation medicines to treat very rare diseases. Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care) The National Institute for Health and Care Excellence plans to review the criteria for determining whether a medicine should be routed to its highly specialised technologies programme later this year. |
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Rare Diseases: Drugs
Asked by: Peter Dowd (Labour - Bootle) Monday 15th April 2024 Question to the Department of Health and Social Care: To ask the Secretary of State for Health and Social Care, how many appraisals for medicines to treat very rare diseases were started through the National Institute for Health and Care Excellence highly specialised technology programme in each financial year since 2018-19. Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care) The following table from the National Institute for Health and Care Excellence (NICE) shows the number of highly specialised technology evaluations that started in each year since 2018/2019:
Note: The term started has been defined as when the NICE sent the invitation to participate. |
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Lyme Disease: Health Services
Asked by: Geoffrey Cox (Conservative - Torridge and West Devon) Monday 15th April 2024 Question to the Department of Health and Social Care: To ask the Secretary of State for Health and Social Care, what steps her Department is taking to (a) promote better awareness within the NHS of the symptoms of Lyme disease and (b) speed up (i) testing and (ii) analysis of test results for Lyme disease. Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women) The National Institute for Health and Care Excellence’s (NICE) Clinical Knowledge Summaries (CKS) are specifically aimed at general practices (GPs), and cover the availability of testing services. The entomology group in the UK Health Security Agency (UKHSA) also has a tick awareness scheme, which sends out information on avoiding tick bites in a spring campaign, and supports local authorities in areas with a high prevalence of Lyme disease. Further information on Lyme disease, access to testing, and the NICE’s CKS’ is available respectively at the links below: https://www.gov.uk/government/collections/lyme-disease-guidance-data-and-analysis https://www.nice.org.uk/guidance/ng95 https://cks.nice.org.uk/topics/lyme-disease/management/management/ All confirmatory testing in England is performed by the Rare and Imported Pathogens Laboratory (RIPL). Delays may occur in the referring laboratory when submitting the sample, during testing at the RIPL, or when accessing the results, which are sent back electronically, before being passed onto GPs. Only the RIPL is within the UKHSA’s control, and the RIPL is planning to introduce new technology to speed up tests for neuroborreliosis. National data analysis is released through the Fingertips system, which is regularly updated. The annual number of cases of Lyme disease varies from year to year, depending on weather conditions in the Lyme season, the effects of weather and human activities on animals that harbor the disease, and the tick population. Further information on the Fingertips system is available at the following link:
https://fingertips.phe.org.uk/profile/health-protection/data |
Parliamentary Research |
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Wildfire risks to UK landscapes - POST-PN-0717
Apr. 15 2024 Found: due to increased ground vegetation and reduced moisture retention41,101 Crown fires are currently rare |
Petitions |
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Restore funding for Hampshire’s only working windmill in Bursledon Petition Rejected - 16 SignaturesThe Bursledon Windmill is a Grade II listed historic building, with significant local significance. It is Hampshire’s only working Windmill, and is one of only 40 that work in the UK. It is part of British history, and needs funding to continue to operate & be enjoyed by future generations. This petition was rejected on 15th Apr 2024 by the Petition CommitteeFound: built in the Victorian era, which featured cast-iron machinery, Bursledon Windmill, is said to be a “rare |
Bill Documents |
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Apr. 18 2024
Research briefing on progress of the Bill Renters (Reform) Bill 2022-23 Briefing papers Found: for unaffordable rent increases in the knowledge that tribunal challenges will remain vanishingly rare |
Apr. 16 2024
Promoter Evidence Part 3 [Pages 233 to 329] Royal Albert Hall Bill [HL] 2022-23 Written evidence Found: by the Corporation which would otherwise be uneconomical to mount, (which is likely to be extremely rare |
Apr. 16 2024
Petitioner Submission Royal Albert Hall Bill [HL] 2022-23 Written evidence Found: As with a typical shareholders annual general meeting it is rare that more than a few shareholders |
Apr. 12 2024
HL Bill 57-I Marshalled list for Report Victims and Prisoners Bill 2022-23 Amendment Paper Found: On the rare occasions where the Crown Prosecution Service decide that a meeting is not appropriate |
Department Publications - News and Communications |
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Tuesday 16th April 2024
Foreign, Commonwealth & Development Office Source Page: UK Government to tackle global financial corruption Document: https://unctad.org/system/files/official-document/aldcafrica2020_en.pdf (PDF) Found: With rapidly rising demand, the risk of smuggling of rare earth minerals is increasing and their improved |
Tuesday 16th April 2024
Foreign, Commonwealth & Development Office Source Page: Joint statement on Multilateral Development Bank Callable Capital Document: IBRD (PDF) Found: Response: In rare cases there may be factors that affect the timeline of the process, for instance if |
Monday 15th April 2024
Department of Health and Social Care Source Page: Causes of death to be scrutinised in revamp of death certificates Document: Causes of death to be scrutinised in revamp of death certificates (webpage) Found: reviewed and the bereaved are fully informed, making the system safer by improving protections against rare |
Department Publications - Guidance |
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Friday 12th April 2024
Cabinet Office Source Page: Procurement Act 2023 guidance documents Document: Guidance: Mixed Procurement (PDF) (PDF) Found: Although these cases may be rare, a test of reasonable separability will also be used to guide decisions |
Department Publications - Policy and Engagement |
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Friday 12th April 2024
Department for Environment, Food and Rural Affairs Source Page: Gamebirds: decision to issue the GL45 gamebird general licence for 2024 to 2025 Document: Defra’s 2024 Habitats Regulations Assessment (HRA) and decision to issue general licence GL45 (PDF) Found: has also considered how GL45 might be modified in response to assessment of a ‘low’ (i.e., event is rare |
Non-Departmental Publications - News and Communications |
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Apr. 19 2024
Employment Appeal Tribunal Source Page: Mr M Jasim v LHR Airports Ltd: [2024] EAT 59 Document: Mr M Jasim v LHR Airports Ltd [2024] EAT 59 (PDF) News and Communications Found: It would be a rare case in which it could be said that the omission of one of these documents was a |
Apr. 18 2024
Competition and Markets Authority Source Page: The CMA at 10: Past reflections and a look ahead to the next decade of promoting competition and protecting consumers Document: CMA’s 2017 literature review (PDF) News and Communications Found: In a rare attempt to address this, Davies , Mariuzzo & Ormosi (201 7) run a Monte Carlo simulation |
Apr. 15 2024
Offshore Petroleum Regulator for Environment and Decommissioning Source Page: Penguins Public Notice Document: Environmental Assessment Justification (PDF) News and Communications Found: damage that could result in MEI, although it should be noted that the likelihood of such an event is rare |
Apr. 15 2024
Welsh Government Source Page: Causes of death to be scrutinised in revamp of death certificates Document: Causes of death to be scrutinised in revamp of death certificates (webpage) News and Communications Found: reviewed and the bereaved are fully informed, making the system safer by improving protections against rare |
Apr. 10 2024
Defence and Security Accelerator Source Page: Crowd watch: DASA funded AI and LiDAR innovation helps enhance crowd safety Document: Crowd watch: DASA funded AI and LiDAR innovation helps enhance crowd safety (webpage) News and Communications Found: user-friendly implementation and everyday value, rather than a single use technology only beneficial in rare |
Apr. 09 2024
Medicines and Healthcare products Regulatory Agency Source Page: Fosdenopterin approved to treat adult patients with molybdenum cofactor deficiency (MoCD) Type A Document: Fosdenopterin approved to treat adult patients with molybdenum cofactor deficiency (MoCD) Type A (webpage) News and Communications Found: MoCD is a rare genetic disorder in which the body is not able to produce cyclic pyranopterin monophosphate |
Non-Departmental Publications - Statistics |
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Apr. 12 2024
HM Revenue & Customs Source Page: UK overseas trade in goods statistics February 2024: import and export data Document: (ODS) Statistics Found: waxes 1128562 2302583 28 Inorganic chemicals: organic or inorganic compounds of precious metals, of rare-earth |
Apr. 12 2024
HM Revenue & Customs Source Page: UK overseas trade in goods statistics February 2024: import and export data Document: (ODS) Statistics Found: waxes 1780599 4079139 28 Inorganic chemicals: organic or inorganic compounds of precious metals, of rare-earth |
Apr. 11 2024
Air Accidents Investigation Branch Source Page: Air accident monthly bulletin April 2024 Document: AAIB Bulletin 4/2024 (PDF) Statistics Found: Whilst aircraft accidents remain relatively rare events, when they occur, the difference that may be |
Non-Departmental Publications - Guidance and Regulation |
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Apr. 11 2024
UK Visas and Immigration Source Page: National Age Assessment Board: caseworker guidance Document: The operation of the National Age Assessment Board and sections 50 and 51 of the Nationality and Borders Act 2022 (PDF) Guidance and Regulation Found: children’s services owed to them , their asylum claim will be processed under adult procedures and, in rare |
Non-Departmental Publications - Transparency |
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Apr. 09 2024
Medicines and Healthcare products Regulatory Agency Source Page: MHRA FOI performance data Document: (Excel) Transparency Found: strengthening’ tools – i.e. their main purpose is to quickly flag up whether there might be a new, rare |
Scottish Select Committee Publications |
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Tuesday 16th April 2024
Correspondence - Letter from the Cabinet Secretary for Justice and Home Affairs to the Convener, 16 April 2024 Victims, Witnesses, and Justice Reform Bill Scottish Government Stage 1 Response Criminal Justice Committee Found: from the indictment before the case reaches trial albeit that these cases are likely to exceptionally rare |
Monday 15th April 2024
Correspondence - Cabinet Secretary for Social Justice's response to points raised by the Delegated Powers and Law Reform Committee Social Security (Amendment) (Scotland) Bill Social Justice and Social Security Committee Found: Section 85B introduces a completely new type of appointment to cover the very rare circumstances where |
Wednesday 27th March 2024
Correspondence - Letter from Michael Connolly, GBGB Licensed Trainer, 27 March 2024 Petition PE1758: End Greyhound Racing in Scotland Rural Affairs and Islands Committee Found: There are very rare circumstances when a GBGBlicensed trainer suffers from health or mental health |
Scottish Government Publications |
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Friday 19th April 2024
Local Government and Housing Directorate Source Page: Time limits for enforcement action for unauthorised EIA development: consultation Document: Time limits for enforcement action for unauthorised EIA development: Consultation (PDF) Found: impact of the proposed Regulations would be limited given unauthorised EIA development should be rare |
Friday 19th April 2024
Chief Operating Officer, NHS Scotland Directorate Source Page: Genomics in Scotland: Building our Future Strategy Summary Document: Genomics in Scotland: Building our Future (PDF) Found: Alliance UK Genetic Alliance UK is an alliance of over 200 organisations supporting people with genetic, rare |
Friday 19th April 2024
Healthcare Quality and Improvement Directorate Source Page: Scotland's Genomic Medicine Strategy 2024-2029 Document: Scotland's Genomic Medicine Strategy 2024-2029 (webpage) Found: with many other strategy and policy areas, for example the Cancer Strategy for Scotland 2023-2033, the Rare |
Friday 19th April 2024
Chief Operating Officer, NHS Scotland Directorate Source Page: Genomics in Scotland: Building our Future Strategy: Implementation Plan Year One Document: Genomics in Scotland Year One Implementation Plan (PDF) Found: Whole Exome Sequencing (WES) and Whole Genome Sequencing (WGS) where relevant within both cancer and rare |
Friday 19th April 2024
Healthcare Quality and Improvement Directorate Source Page: Scotland's Genomic Medicine Strategy 2024-2029 Document: Genomics in Scotland: Building our Future (PDF) Found: As with rare conditions, rare cancers collectively account for more than 22% of all cancer diagnoses |
Friday 19th April 2024
Chief Operating Officer, NHS Scotland Directorate Source Page: Genomics in Scotland: Building our Future Strategy Summary Document: Genomics in Scotland: Building our Future Strategy Summary (webpage) Found: listed here.Genetic Alliance UK is an alliance of over 200 organisations supporting people with genetic, rare |
Tuesday 16th April 2024
Environment and Forestry Directorate Agriculture and Rural Economy Directorate Source Page: Market Framework for Natural Capital - Engagement Paper Document: Market Framework for Natural Capital - Engagement Paper (PDF) Found: identification and protection of heritage sites that could be damaged by project activities or threatened and rare |
Thursday 11th April 2024
Energy and Climate Change Directorate Source Page: Water industry: Delivery Assurance Group minutes - June 2023 Document: Water industry: Delivery Assurance Group minutes - June 2023 (webpage) Found: Jon noted a rare cross-party information-sharing call the day before this meeting with SW, Cabinet Secretary |
Thursday 11th April 2024
Energy and Climate Change Directorate Source Page: Water industry: Delivery Assurance Group minutes - June 2023 Document: DAG Minutes June 2023 (PDF) Found: Jon noted a rare cross-party information-sharing call the day before this meeting with SW, Cabinet Secretary |
Scottish Parliamentary Research (SPICe) |
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Judicial Factors (Scotland) Bill
Wednesday 10th April 2024 This briefing covers the Judicial Factors (Scotland) Bill. A judicial factor is a person appointed by the court to gather in, hold, safeguard and administer property belonging to someone else. The Bill aims to reform the existing law associated with judicial factors. View source webpage Found: Adults with Incapacity (Scotland) Act 2000 .2 Appointments of judicial factors are currently relatively rare |
Scottish Parliamentary Debates |
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Hate Crime and Public Order (Scotland) Act 2021
122 speeches (127,875 words) Wednesday 17th April 2024 - Main Chamber Mentions: 1: Greene, Jamie (Con - West Scotland) Today, we have the rare benefit of hindsight and today, I, too, will vote to repeal the act. - Link to Speech |
Scotch Whisky Industry
25 speeches (70,983 words) Wednesday 17th April 2024 - Main Chamber Mentions: 1: Harper, Emma (SNP - South Scotland) thankful that the industry has almost completely stopped that practice, and overtly sexist marketing is rare - Link to Speech |
Putting Langholm on the Map
18 speeches (34,719 words) Tuesday 16th April 2024 - Main Chamber Mentions: 1: Mundell, Oliver (Con - Dumfriesshire) Community efforts are now firmly focused not on halting decline, but on reversing it.This is rare praise - Link to Speech |